I Heart Silicone Medical ID Bracelets ♥

Like most of us, some things “diabetes” I’m good at and some…not so good.   An area I usually excel in is being a “good girl” and wearing a type 1 medical ID bracelet.  I’m not the kind of person that wears a lot of jewelry on a regular basis, nevertheless, when I first started wearing a diabetes ID, I tried out a few different kinds of bracelets.  Most of them were very jewelry-like, lasted a day or two, and now sit in a drawer collecting dust.  Once I discovered the ease and beauty of simply wearing a piece of silicone, I never went back to the other “prettier” bracelets.  Silicone works for me because I don’t have to worry about getting it wet or getting food on it when I’m cooking; the kids can pull on it and play with it; I can shower, sleep, swim, play sports, and generally be active all while comfortably wearing it…and it still looks like it did on the day I started abusing it 4 years ago.

While I can’t control when or if an emergency situation might occur, I can try to have important info on hand (pun intended).  So, if I’m going to wear the darn thing every day (in case of an emergency), I don’t just want it to say “Type 1 Diabetic” on it.  I want it to at least list general medical information and my husbands phone number.  I really like the idea of providing a phone number of someone who knows what medications and dosages I’m on, who knows my kids and their schedules.  I find it comforting.

Geez, how can I fit all that information on a wristband?

I found a lot of bracelets that have tiny little pieces of papers or cards in them that you’re supposed to be able to neatly fill out with personal information.  Sorry, but my handwriting is not that good (or that small).  Plus, it’s paper…what kind of life expectancy can that little slip of paper have with stinky toddler fingers, days at the pool, and sinks full of dirty dishes?

custom silicone diabetes wristbandI’ve researched endlessly online to find a company that will let me add multiple lines of custom text to a silicone bracelet (without requiring a minimum order of 50!).  Here is my favorite: Design-A-Band.  OK, admittedly, their site might seem a little hokey but I’ve ordered various bracelets from these guys over the years and they’re always spot-on!

silicone medical type 1 diabetes bracelet frontAnd…drum role please…here’s my current favorite wristband: tried but true, worn day in and day out for 4 years, and glow-in-the-dark.  On the outside I have some basic info that the whole world can see and on the inside, I have personal medical information and contact phone numbers.

silicone medical type 1 diabetes bracelet backI’m on a continuous quest to find ever cooler looking, totally customizable silicone wristbands.  I’ll keep you posted…

Got one you really like?  Tell us about it!

Synthetic Hormones and Type 1 Diabetes: A Call For Sharing Personal Stories

A FEW NECESSARY FACTS:

There are many reasons for taking synthetic (and largely female) hormones, including fertility treatments, sustaining pregnancy after IVF, Premature Ovarian Failure (POF), Primary Ovarian Insufficiency (POI), perimenopause, and menopause.

All these conditions (and normal menopause without hormone replacement therapy – HRT) greatly affect our insulin sensitivity and can require seemingly radical (and scary) changes in one’s insulin regime.

In addition, Premature Ovarian Failure and Primary Ovarian Insufficiency can be caused by an autoimmune disorder.  Ugh, sound familiar?  AND, it’s common for individuals with one autoimmune endocrine disorder to develop others.  Boo Hiss!  Studies on both of these phenomena are ongoing and the mechanisms aren’t fully understood (or easily determined with lab tests).

major endocrine glands     hormone balance

Here’s a pic showing all of the endocrine glands in our bodies and another showing how hormones made by some of these glands are interrelated.

A BIT ABOUT MY STORY:

I experienced major insulin sensitivity changes when I developed sudden-onset POF (at age 35) and started on HRT (the most bioequivalent versions I could find).   I also went through my second pregnancy while on synthetic estrogen and progesterone (same hormones as women who undergo IVF), and am now looking to get regulated back on HRT since I’m done breastfeeding (and apparently still post-menopausal).

As a T1 with Grave’s Disease (autoimmune thyroid condition), I was able to find a lot of information and personal stories shared online (years ago!) about people with thyroid disorders and type 1diabetes.  But, when it came to a diagnosis of POF and subsequent HRT and pregnancy, I couldn’t really find anything.  My Endo didn’t even know there was a link between POF and other autoimmune endocrine disorders (Gah! Needless to say, I see a different Endo now).

WANT TO SHARE YOUR STORY TOO?

I wish I had been educated (at least a little bit) about some of these issues and how all of our endocrine glands and hormones really affect one another before my body became the ultimate lab experiment.  I’d like to share my experiences in the hopes of helping and relating to others and am looking for other women who would be willing to share their experiences as well.

What hormones were you on/missing?  Were you undergoing hormone treatment for infertility, POF, POI, IVF, normal menopause?  Was your hormone treatment cyclic in nature?  Was it bioequivalent?  How did your insulin sensitivity change?

I’d love to start a page on my blog that could serve as a central place for women to share their stories about major hormone changes (especially synthetic hormones and menopause) and how they affected blood sugar and insulin requirements.  Drastic hormone changes are bad enough without also feeling isolated on the diabetes front.  Please contact me if you have a story to share.

While I’m sure our experiences were quite different in some respects, one thing we’ve all faced is trying to adjust our diabetes management to meet the demands of hormone-induced insulin sensitivity changes.  Let’s share our stories!

 

Here are a few more-scientific articles related to hormone-insulin relationships and autoimmune hormone disorders.

mySugr Diabetes Logging App: Awesomesauce!

How on earth could a diabetes logging app earn the term “awesomesauce”?  I mean, come on, we all know logging is lame.  Well, read on!  mySugr is easy to use, modern looking (seriously, no medical clunkiness here!), and extremely rewarding.  It’s fun to play, keeps my information stored and accessible in a bunch of useful ways…and it’s pretty too!

When you first create your account with the app, you get to name your “Diabetes Monster.”  This little guy sits on your home screen and chides you with silly faces and “na nanny booboos” until you earn 50 points in a day and then he gets a zipper placed over his mouth (literally) and you’ve “tamed the monster” for the day.  Here, mine is named “Yo Cyborg Yo” and I currently have 38 points, (which is tracked with a blue progress bar in the top portion of the screen).

mySugr home screen

mySugr logbook blank entry

Logging entries is quick and easy.  The time  and location are auto-set.  Most of the fields use your phone number keypad (as opposed to scroll wheels with limited options).  There are three screens of fun little icons for quickly adding information that you’d have to type into a notes field in other apps, like “alcohol” or “menstruation” (don’t worry, there is still a manual-type notes field for when you want it).

mySugr icons

One of my favorite features of this app is the ability to take pictures of what food I’m logging (right from the log entry), because it’s not about the number of carbs but the type of carbs, right?  They really hit the nail on the head here.  No more laborious, typed descriptions of what kind of food I’m eating…just snap-and-go!

There is a colored BG graph at the top of the logbook and as you scroll back through your entries, the graph moves too and shows the BG data occurring in the 24- hour period surrounding the logbook entries currently showing on your screen.  I love how dynamic this is!

mySugr-logbook      mySugr photo entry

You can also look up past entries by searching for any term you typed in (such as descriptions or notes), location name, or chose a picture from the photo library and then see the same 24-hour graph displayed for any search results entry you chose.  Great for checking to see what happened to your BG the last time you tried you a pint of stout from that new place down the street :)

mySugr challengesTo get the Pro version (which includes the keyword search, unlimited photos, and various personalization options), all you have to do is “play” the challenges.  Yes, there are enough challenges to let you win and keep Pro without paying for it…if you keep playing and completing them.  Two of the challenges involve logging a certain number of BG entries and two of them involve logging a certain amount of activity  (bonus: one of these earns community points towards JDRF donations!).  All challenges are available once a week.

Even though there isn’t a corresponding website where you can access your data and reports, your data is stored on a server and you can access it on multiple devices (iPhone and iPad) at the same time after entering your account info into the app.  This is key for me so if my iPhone gets lost/stolen I won’t lose all my past data forever.

In a perfect world, what would I add if I could?

  • I’d love if it had a way to enter information for an extended bolus.  When I eat something that I use a bolus extension for, I like to try to look back at similar entries and see if past extensions worked or need modification.  i.e. Did I extend 50% for 2 hours or 30% for 3?
  • I’d also like to be able to save “activity descriptions” I’ve entered in some kind of dropdown, so I didn’t have to type the same ones over and over.
  • And I’d like to be able to reorganize the order of the tag icons, so I could put the ones I use the most on the first screen and not have to flip through several screens to get to them.

A word on customer service:

I had a syncing error when the app was updated and lost enough data to make me loose a couple of challenges.  Sad face.  I contacted customer support (turned out to be Scott Johnson) and he promptly sent me a coupon code to redeem several days of Pro (plus some for my trouble).  When there was a glitch in the system to cache in those days on my account, I contacted him again.   It took quite a few trial solutions for them to figure out what was going wrong and fix it but they really stuck with it until a solution was reached….for one little piddly customer.  I was impressed.

mySugr Made with loveAs a final note, I really appreciate when I scroll down on the home screen and see a little “Made with love ♥” tag.  My husband, who is a designer, uses this saying a lot.  When we go out to eat he uses it to describe a plate of food that he thinks someone gave a lot of cooking time and attention to, as opposed to slapping it on the plate.  So, if mySugr were a plate of food I ordered in a restaurant, it would certainly earn the term Made with love!

A Few Blogger Reviews:

Thinking of Getting a New Insulin Pump Soon? Check Out This Article On diaTribe Comparing the Top 6 Pumps.

This diaTribe article by Gary Scheiner has a great little summary with lots of suggestions to help you pick the right pump for you but the comparison information it links out to on Integrated Diabetes Services gives you the full monty on each current pump.  Happy pumping!

Integrated Diabetes Services Insulin pump comparisons