Just a Little Girl and her Mommy…and Mommy’s Diabetes Accessories

Ruby's-AccessoriesLittle girls do love their accessories and mine has an eagle eye for detail.  Here, my daughter Ruby has on her cool Reef flip-flops, a white snap bracelet with cherries, blue mirror shades, a pink and green striped raccoon tail, and a multicolored hair wrap with hot pink feathers on the end.

Needless to say, when I changed up my diabetes supply cases this weekend, she was quick to notice.  “Mommy I like your new gold case with the white case better than the old silver case with the green case.  And I like the pink case too.”  Hmmm, that’s a lot of cases. She’s grown up knowing it’s “Mommy’s diabetes stuff” but we haven’t ever talked about which case is for what.

New-Diabetes-CasesMy husband and I explained that the white case was a “skin” case for Mommy’s OmniPod, the gold case was Mommy’s diabetes kit and the pink case was for Mommy’s CGM, which stands for Continuous Glucose Monitor.  “Rubes, do you know what continuous means?”

“No.”

“It means all the time and Glucose means sugar.  Do you know what monitor means?”

“No.”

“Monitor means watcher.  So, the pink case is Mommy’s all the time sugar watcher.”

Ruby grinned and chimed in with “And your bracelet is your sleep watcher!”

Oh, yeah, that’s right…there’s also the Fitbit Flex I wear, which tracks activity and sleep. Little girls…they don’t miss an “accessory” beat!

Big Diabetes Data Requires Big Analyses

If you’re anything like me, you’re currently clocking data on your CGM, your insulin pump, your BG meter, and any other number of devices including mobile apps for diabetes, fitness, or menstrual cycle, and wearable fitness devices like Fitbit.

It’s easy to look at one post-meal high and make a judgment call.  But it’s really hard to look at months worth of data and try to pull out patterns to really improve overall BGs and health.  Websites that integrate with my OmniPod and CGM (and are Mac compatible…don’t get me started on this…Gah!) only have the capability to really track BG and carb counts well.  But we all know it’s the type of carbs, not the number of carbs that really matters.  Also, was I especially active on a particular day?  Stressed from a big meeting at work?  Having PMS?  So many variables to consider!

big diabetes dataSince I already have all the BG and insulin data on my pump, meter, and CGM, (that I’ve laboriously collected!) I literally fantasize about just uploading those items to a single program online and then using apps of my choice to input details about my other “life variables,” such as food, exercise and activities, moods, monthly cycle, etc…..and finally (here’s the kicker) have the apps sync their data with the existing pump/meter/CGM data online in the same program!  Perfect!  Easy!  Right?  No way!

As you’re probably well aware, most of our diabetes meters, pumps, and CGMs have proprietary software and/or limited relationships with other diabetes-device companies.  So, based on who manufactured our devices, we’re all pretty much limited to one or two platforms for viewing the data…and those options sadly don’t integrate with apps we’re using to track our food, fitness, etc.

My current work-a-round solution for viewing OmniPod and CGM data (on a Mac) is Diasend, however even here you need a Clinic ID# (or to register as a non-US citizen) or your CGM tab will be grayed out.  I also use the mySugr app for logging (btw…I love mySugar), Google Cal for my monthly cycle and HRT, and just started tracking activity and sleep with a Fitbit Flex.  I make it work but it’s still me piecing together data from four different locations.

fitbit open apiFortunately (and just in the nick of time if you ask me) the US is at the beginning of a wave of personalized, data-centric healthcare, sometimes called the Quantified Self.  A lot of new data collection platforms designed for non-PWDs (like Fitbit and Lose It!) are using open APIs, which means they share and can integrate data.  After years of finding work-a-rounds and “making do” I feel like the current big data trend in healthcare is finally going to make my fantasy a realty…in the very near future.  So, everyone put down your proprietary diabetes devices for a second and raise your glass!  Here’s to hoping!


Super interested in the Quantified-Self movement like me?  Here are a few really cool recent articles:

Will An App A Day Keep The Doctor Away? The Coming Health Revolution (Forbes)

Solving America’s Big Health Care Challenges With Big Data (Huffington Post)

How Patient Generated Data Changes Healthcare (Information Week Healthcare)

Wearing My OmniPod On My Back: A Little Help Here?

So lately I’ve been trying out OmniPod sites to experiment with my insulin absorption rates.  Wearing the pod on my back is great as far as insulin absorption and blood sugar are going, however, how the heck do you reach back there to change your pod?

If I was just using the OmniPod and the adhesive it came with, I’d probably be ok using a mirror to place new pods and remove old ones…but I use Skin Tac and (as many of you know) that stuff is messy!

When I place pods on my belly, the circle of Skin Tac I apply first is larger than the circle of the OmniPod adhesive, so I’m left with a sticky ring around the new OmniPod when I’m done that I have to go back and carefully clean off.

No way I can use an adhesive remover on my back and just wipe off the extra “ring” of Skin Tac without also getting some on the OmniPod.  If you can do this…more power to you!  But, I’m just not that flexible/coordinated anymore.  What’s a girl to do?  Well, actually I’ve been asking my husband to assist with hard-to-reach site placements.  He diligently sprays the old pod with De-Solv-it, removes all the old, yucky residue, places the new pod (where I actually want it instead of where I’d probably accidentally stick it if I was trying to place it back there myself), and wipes away the “ring” of leftover Skin Tac.  Yeah, I know…he’s a great catch!

What would I do without him? Anyone have any good tricks to share for hard-to-reach sites?

Site Rotation Save Me

So, I’ve always been guilty of not rotating my pump sites enough, in fact you could call me downright resistant.  I guess when I find something I like, I just want to stick with it and after all, I do ask my Endo about it occasionally and he always replies in his usual fashion “All looks good Julie”.

Pregbelly

And this pic is only my 7th month…yikes!

For years, I used to use my belly for my Omnipod and rotate through about 6-8 sites but last year, during my pregnancy, I had an enormous belly and a lot of discomfort with my pump, so I started relying on only two sites.

Since then (it’s been 13 months!), I guess I just got lazy, or caught up with putting life ahead of routine diabetes management…we’ve all been there right?  Frankly, I still have 28lbs of baby weight to lose and the old sites (which were largely around my waistband) just aren’t comfortable anymore.

Well, I started noticing that it looked my insulin needs were increasing?!  It didn’t make sense:  I was breastfeeding, not overweight (technically), active, hadn’t changed my eating habits, other medications, etc.  WTH?!

It finally dawned on me that maybe my poor old sites were just worn out.  I Googled it and came across lipohypertrophy and then got scared out of my pants by doing an Image Search for it (fyi, don’t click on this Image Search unless you’re fully ready for the unsettling consequences).  Enough said…site rotation here I come!

Now, I don’t have any signs of lipohypertrophy yet but when I was pregnant, my insulin needs tripled and it makes sense that my insulin absorption rates for those belly sites might have taken a toll.

backpod

I’m currently a proud wearer of a back Omnipod…day two ;)  It has it’s issues and will take some getting used to (especially when I try to carry a backpack)…but my sugars have been much lower, while everything else has stayed pretty much the same (same insulin rates, same diet and activity, same morning and afternoon coffee, same evening glass of wine…you get the picture).  So far this experiment is a success, Phew!

Stay tuned for more pod placement experimentation…